People with multiple sclerosis (MS) may end up in wheelchairs. People with MS climb mountains and run marathons. Both statements are true, but neither accurately describes what it means to have MS.

MS is a widely misunderstood disease — not only by the general public, but even by those who live with it. The goal of March’s MS Education and Awareness Month is to promote understanding of MS and to help people with MS to make educated decisions about their health care needs.

While much progress has been made in research and treatment of the condition, an equal amount of mystery remains. That mystery often leads to a sense of isolation and fear, and newly diagnosed patients don’t always know where to turn for information. (…MORE)

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One thing is clear — life with multiple sclerosis is anything but predictable. MS doesn’t come with a road map, a GPS system, or a set of directions. There is no forgone conclusion — and despite the uncertainty, that is good news.

Plenty of people will tell you horror stories of life with MS (…more)

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My own first reaction to Mrs. Salahi’s announcement was to yawn and move on. It does not thrill me to give more attention to someone obviously addicted to attention for attention’s sake, but as a person who has MS, I am rather surprised by reaction to the story.

There is a fair amount of understandable skepticism about her claim, considering her reputation and that sales of a newly released book are at stake. And her explanation that her thin figure is the result of MS is confusing. The very long list of MS symptoms generally does not include weight loss or thinness.

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Michaele Salahi Battling MS and Bad Press

Related reading:

• MS: Who Gets it and Why
• National Chronic Invisible Illness Week: What You Can Do
• Harry Potter Author Donates Millions to Multiple Sclerosis Research

Image: official White House photo

Young children, the elderly, and people with serious health conditions are at particular risk of heat stroke. According to the U.S. Centers for Disease Control (CDC), heat-related illness occurs when your body cannot properly cool itself by sweating. Very high body temperatures can damage the brain and other vital organs. Risk factors include age, obesity, fever, dehydration, heart disease, mental illness, poor circulation, sunburn, and prescription drug and alcohol use.

At least one person on the east coast has died due to excessive heat exposure this month.

How to avoid heat-related illness…

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We’re Havin’ a Heat Wave… 7 Tips to Avoid Heat Stroke

Related Reading: Surviving Summer with Multiple Sclerosis

Photo: CDC

They are common enough that before the introduction of MRI and other modern testing, the ‘hot bath test’ was sometimes used to diagnose MS. Doctors would observe people who were immersed in hot water and watch for neurological impairment that improved after cooling.

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Surviving Summer with MS

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• Walking helps you manage your weight, lowering your risk of heart disease, stroke, and type 2 diabetes.
• It is a gentle, low-impact exercise and easy on the joints.
• Walking improves circulation; increases your energy level; improves sleep, mood, and sense of well-being.
• It is free. You don’t need a health club membership or special equipment. A good pair of walking shoes will do the trick.
• Walking with family, friends, or neighbors can be a social outlet.
• You don’t have to go anywhere in particular, although that’s certainly efficient; it is more about the journey.
• It is a good way to calm and declutter your mind. It will get you out of the house and into the great outdoors, where you can let your thoughts roam freely. (Turn off that cell phone!)

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Walking Your Way to a Healthier Mind, Body, and Soul

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In the years following the diagnosis, changes came in small doses for me, some changes more obvious than others. No matter how I look at it, everything is different than it was before, though not in an entirely negative way. Perhaps some of the changes that I casually attribute to MS would have come regardless.

Unlike the neat chapters in a book or the tidy absolutes of episodic television, life’s ups and downs tumble around in no particular order or regard for what else is going on. New episodes begin even while old ones are in mid-stream and unresolved.

Most of us understand and accept that life isn’t fair. Much like…

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Coping with MS: Breaking the Cycle of Defeat

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Well that actually does sound like an insanely ridiculous thing for a wife to say to her husband, but I said it nonetheless. It was another baby step in my overall plan to take back the life that MS would destroy if I allowed it.

After the diagnosis of multiple sclerosis, physicians, pharmaceutical companies, hospitals, and MS patient-advocacy groups unleashed a mountain of printed material and videos upon us, and we set about the task of learning all we could. Even prior to diagnosis, our suspicions of MS lead us to online research. We began with well-known and well-respected medical sites, then gravitated toward something less formal but slightly more tangible — other people with MS.

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Your Choice: Exist with It or Live with It

Multiple Sclerosis Education & Awareness Month

A Diagnosis Odyssey: Learn why a diagnosis of MS may take years.

Who Gets It and Why: Get the who, what, where, when, why, and how of it.

Diagnosis, Denial, Due Diligence: After the diagnosis there may be a period of denial. Then the real work begins.

Longing for Liberation: Controversial new Liberation Treatment turns conventional MS wisdom on its head.

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That’s why the Multiple Sclerosis Foundation recognizes March as National MS Education & Awareness Month, and the National MS Society designated March 8-14 as MS Awareness Week.

WHO gets MS? About 2.5 million people worldwide…

WHAT is MS? MS is a neurological disease in which…

WHERE is MS most prevalent? Northern latitudes farther…

WHEN do people get MS? It is difficult to pinpoint when MS begins, but diagnosis usually…

WHY do people get MS? That’s the big question! The cause…

HOW is MS treated? There are several…

Throughout the month of March, I will offer glimpses into my own life with MS in Care2 Healthy & Green Living. While there is no such thing as a typical case, those who are familiar with MS will nod in recognition. If you are not familiar with MS, please allow us a few moments of your time during MS Education and Awareness Month, and check back here in Care2 Causes in the weeks to come.

Read this post in its entirety:

Who Gets MS and Why

Photo: U.S. Centers for Disease Control and Prevention

Confused? You are not alone. That’s why the Multiple Sclerosis Foundation recognizes March as National MS Education & Awareness Month, and the National MS Society designated March 8-14 as MS Awareness Week.

Throughout the month of March, I will offer glimpses into my own life with MS. While there is no such thing as a typical case, those who are familiar with MS will nod in recognition. If you are not familiar with MS, please allow us a few moments of your time during MS Awareness Month.

A Diagnosis Odyssey

It began with a seemingly benign but persistent tingly feeling in my upper right arm. It was the kind of thing you tend to dismiss and certainly not the kind of thing that makes you rush out to see a doctor.

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Multiple Sclerosis Awareness Month: A Diagnosis Odyssey

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