Health Resources
American Medical Association’s Resources for Patients – From finding a doctor to exploring health care careers; from health and medicine resources to helping us advocate for patients’ rights.
Americans with Disabilities Act – Information and technical assistance on the ADA.
Care2 Healthy and Green Living
Centers for Medicare & Medicaid Services – U.S. Department of Health and Human Services.
– Children’s Health Insurance Program (CHIP) – On February 4, 2009, President Obama signed the Children’s Health Insurance Program Reauthorization Act (CHIPRA), which renews and expands coverage of the Children’s Health Insurance Program (CHIP) from 7 million children to 11 million children. CHIP was previously known as the State Children’s Health Insurance Program (SCHIP). Originally created in 1997, CHIP is Title XXI of the Social Security Act and is a state and federal partnership that targets uninsured children and pregnant women in families with incomes too high to qualify for most state Medicaid programs, but often too low to afford private coverage. Within Federal guidelines, each State determines the design of its individual CHIP program, including eligibility parameters, benefit packages, payment levels for coverage, and administrative procedures. In addition to renewing the CHIP program, the new legislation makes it easier for certain groups to access CHIP health care, including uninsured children from families with higher incomes and uninsured low-income pregnant women.
– Medicaid – Medicaid is available only to certain low-income individuals and families who fit into an eligibility group that is recognized by federal and state law. Medicaid does not pay money to you; instead, it sends payments directly to your health care providers. Depending on your state’s rules, you may also be asked to pay a small part of the cost (co-payment) for some medical services.
– Medicare – Government insurance program for people aged 65 and older, people under age 65 with certain disabilities, and people of all ages with end-stage renal disease (permanent kidney failure requiring dialysis or a kidney transplant).
Chronic Disease Fund - A 501(c)(3) non-profit organization that offers financial relief to seriously-ill Americans who have insurance, but cannot afford their life-saving medication.
Consolidated Omnibus Budget Reconciliation Act (COBRA) – U.S. Department of Labor: Giving workers and their families who lose their health benefits the right to choose to continue group health benefits provided by their group health plan for limited periods of time under certain circumstances such as voluntary or involuntary job loss, reduction in the hours worked, transition between jobs, death, divorce, and other life events.
Consortium of MS Centers - Our core purpose is to maximize the ability of MS health care professionals to impact care of people who are affected by MS, thus improving their quality of life.
Disability.gov – Connecting the disability community to information and opportunities.
– Benefit Programs – Economic safety nets and incentives to work.
– Civil Rights – Equal opportunity and protection under the law.
– Community Life – Independent Living and full participation in the community.
– Disability Laws – Understanding the laws that protect the rights of people with disabilities in education, employment, health care, and transportation, and advance the full participation of people with disabilities in their communities, schools, and at work.
– Education – Knowledge and training for future success.
– Emergency Preparedness – Preparing for and responding to emergencies and disasters.
– Employment – Economic independence through jobs and self-employment.
– Health – Public, private, and community-based health care options.
– Housing – Accessible and affordable housing options.
– Technology – Access and independence through technology.
– Transportation – Travel independently across town or across the country.
Disability Network Connections - Fighting for persons with disabilities through internet activism.
Invisible Disabilities Advocate - A non-profit organization that reaches out to people living with debilitating illness, pain and injury.
Multiple Sclerosis Australia (MSA) - Seeking the Cure. Providing the Care.
Multiple Sclerosis Association of America - A national nonprofit organization whose mission is to enrich the quality of life for everyone affected by multiple sclerosis (MS).
Multiple Sclerosis Foundation - Provides a comprehensive approach to helping people with MS maintain their health and well-being.
Multiple Sclerosis International Foundation - Independent information from MS professionals worldwide.
Multiple Sclerosis Resource Center (MSRC) – A proactive and innovative charity, passionately committed to supporting anyone affected by Multiple Sclerosis through access to unbiased information and advice.
Multiple Sclerosis Society of Canada - A leader in finding a cure for multiple sclerosis and enabling people affected by MS to enhance their quality of life.
Multiple Sclerosis Society of India (MSSI) - Promoting and funding MS Research.
Multiple Sclerosis Society of New Zealand (MSSNZ) - Educating and Advocating for people with MS and their support networks.
Multiple Sclerosis Society UK - The UK’s largest charity for people affected by multiple sclerosis (MS) – about 100,000 people in the UK.
Multiple Sclerosis South Africa (MSSA) - South African Support Group.
Myelin Repair Foundation - Created to address the systemic problems in medical research and commercial drug development that work against the rapid delivery of patient treatments.
National Multiple Sclerosis Society- MS stops people from moving. We exist to make sure it doesn’t.
National Institute of Neurological Disorders and Stroke (NINDS) - National Institutes of Health – reducing the burden of neurological disease.
National Institutes of Health – The U.S. Department of Health and Human Services, the nation’s medical research agency.
Social Security Disability Online – Information regarding benefits for people with disabilities. The Social Security and Supplemental Security Income disability programs are the largest of several federal programs that provide assistance to people with disabilities. While these two programs are different in many ways, both are administered by the Social Security Administration and only individuals who have a disability and meet medical criteria may qualify for benefits under either program. Benefits Eligibility Screening Tool
U.S. Centers for Disease Control and Prevention – Provides the public with health and safety information.
Veterans Benefits Administration – U.S. Department of Veterans Affairs
– Disability Compensation – Disability compensation is a benefit paid to a veteran because of injuries or diseases that happened while on active duty, or were made worse by active military service. It is also paid to certain veterans disabled from VA health care. The benefits are tax-free.
–Public Health Issues – VHA constantly monitors the nation’s health and preparedness levels. Read reports and comprehensive background information about public health emergencies. Learn about health care services and resources dedicated to the needs of women veterans, homeless veterans, and other former service members. Find out the facts behind diseases stemming from hazardous exposures, including Agent Orange and depleted uranium.
– VA health benefits – Open to all veterans. Family members may also be eligible to receive benefits. There is no monthly premium for VA care, but there may be a co-pay. Application information.
World Health Organization – Directing and coordinating authority for health within the United Nations system.
Find out who your representatives in congress are and don’t hesitate to let them know where you stand on the subject.
– U.S. Senate – Searchable database of all current senators.
– Write Your Representative – This service will assist you by identifying your Congressperson in the U.S. House of Representatives and providing contact information.
Health Care Self-Advocacy: Be the Squeaky Wheel: It’s your body, and no one has more incentive to take care of it than you do. You can’t depend on anyone else to take the reins when it comes to your health. The responsibility lies with you. Don’t be a passive patient; be a squeaky wheel.
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No More Secs! Living, Laughing & Loving Despite Multiple Sclerosis
by Ann Pietrangelo
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