MS Bloggers & Info
MS BLOGGERS:
Brass and Ivory’s Lisa Emrich maintains the most comprehensive list of MS Bloggers ever for your browsing pleasure.
Info Around the web:
Care2 Healthy & Green Living with Multiple Sclerosis - My Care2.com articles about life with MS and chronic illness.
Care2 Reform Health Policy - My Care2.com articles relating to health policy and health care reform.
Chronic Disease Fund – A 501(c)(3) non-profit organization that offers financial relief to seriously-ill Americans who have insurance, but cannot afford their life-saving medication.
Chronic Illness Career Coach – Committed to giving people who live with chronic illness the tools they need to be employed.
Consortium of MS Centers – Our core purpose is to maximize the ability of MS health care professionals to impact care of people who are affected by MS, thus improving their quality of life.
Disability.gov – Connecting the disability community to information and opportunities.
Disability Network Connections – Fighting for persons with disabilities through internet activism.
European Multiple Sclerosis Platform – News and information.
Invisible Disabilities Advocate – A non-profit organization that reaches out to people living with debilitating illness, pain and injury.
Multiple Sclerosis Association of America – A national nonprofit organization whose mission is to enrich the quality of life for everyone affected by multiple sclerosis (MS).
Multiple Sclerosis Resource Center (MSRC) – A proactive and innovative charity, passionately committed to supporting anyone affected by Multiple Sclerosis through access to unbiased information and advice.
Multiple Sclerosis Australia (MSA) – Seeking the Cure. Providing the Care.
Multiple Sclerosis Foundation – Provides a comprehensive approach to helping people with MS maintain their health and well-being.
Multiple Sclerosis International Foundation – Independent information from MS professionals worldwide.
Multiple Sclerosis Society of Canada – A leader in finding a cure for multiple sclerosis and enabling people affected by MS to enhance their quality of life.
Multiple Sclerosis Society of India (MSSI) – Promoting and funding MS Research.
Multiple Sclerosis Society of New Zealand (MSSNZ) – Educating and Advocating for people with MS and their support networks.
Multiple Sclerosis Society UK – The UK’s largest charity for people affected by multiple sclerosis (MS) – about 100,000 people in the UK.
Multiple Sclerosis South Africa (MSSA) – South African Support Group.
Myelin Repair Foundation – Created to address the systemic problems in medical research and commercial drug development that work against the rapid delivery of patient treatments.
National Multiple Sclerosis Society – MS stops people from moving. We exist to make sure it doesn’t.
National Institute of Neurological Disorders and Stroke (NINDS) – National Institutes of Health – reducing the burden of neurological disease.
Social Security Disability Online – Information regarding benefits for people with disabilities.
On Twitter:
@CDFund – A 501(c)(3) non-profit organization that offers financial relief to seriously-ill Americans who have insurance, but cannot afford their life-saving medication.
@EdwardJanus – Fighting for persons with disabilities through internet activism.
@MSRC – A proactive and innovative charity, passionately committed to supporting anyone affected by Multiple Sclerosis through access to unbiased information and advice.
@MRF_Justine – Internet Strategist at Myelin Repair Foundation.
@MS_Bloggers – Multiple Sclerosis is the common thread. Blogging is the common medium.
@MSSociety – Multiple sclerosis stops people from moving. We exist to make sure it doesn’t.
@MSSocietyCanada – To be a leader in finding a cure for multiple sclerosis and enabling people affected by MS to enhance their quality of life.
@MSSocietyUK – The MS Society is the UK’s largest charity for people affected by multiple sclerosis (MS).
@MyelinRepairFdn – Reducing the time it takes to discover and develop treatments for MS Patients.
@ReeveFoundation – Dedicated to curing spinal cord injury by funding innovative research and improving the quality of life for people living with paralysis.
@WorkWithIllness – Chronic illness career coach.
Oh, and you can follow me @AnnPietrangelo, and this growing list of MS bloggers on Twitter.
On Facebook:
But You Don’t Look Sick! – Invisible illnesses cause others to state, “but you don’t look sick.” This group is dedicated to discussions and sharing of knowledge of chronic pain.
Chronic Disease Fund – A 501(c)(3) non-profit organization that offers financial relief to seriously-ill Americans who have insurance, but cannot afford their life-saving medication.
CiCoach.com – Committed to giving people who live with chronic illness the tools they need to be employed.
Invisible Disabilities Advocate – A non-profit organization that reaches out to people living with debilitating illness, pain and injury.
Multiple Sclerosis Foundation – Provides a comprehensive approach to helping people with MS maintain their health and well-being.
Multiple Sclerosis Resource Center (MSRC) – A proactive and innovative charity, passionately committed to supporting anyone affected by Multiple Sclerosis through access to unbiased information and advice.
Multiple Sclerosis Society of Canada – A leader in finding a cure for multiple sclerosis and enabling people affected by MS to enhance their quality of life.
Multiple Sclerosis Society UK – The UK’s largest charity for people affected by multiple sclerosis (MS) – about 100,000 people in the UK.
Myelin Repair Foundation – Created to address the systemic problems in medical research and commercial drug development that work against the rapid delivery of patient treatments.
National Multiple Sclerosis Society – MS stops people from moving. We exist to make sure it doesn’t.
Informational Articles:
Health Care Self-Advocacy: Be the Squeaky Wheel: It’s your body, and no one has more incentive to take care of it than you do. You can’t depend on anyone else to take the reins when it comes to your health. The responsibility lies with you. Don’t be a passive patient; be a squeaky wheel.
Tools to Keep Track of Health Care Policy and Reform: Staying current with health care legislation is an overwhelming task. Rules and regulations vary from state to state and family to family, depending on individual circumstances. When it comes to laws that affect your health and well-being, leave no stone unturned. Never assume that what you’ve heard is all there is. If you have questions about health care policy or reform, check with multiple reliable sources.
Guide to Rights under Americans with Disabilities Act (ADA): The Americans with Disabilities Act (ADA) prohibits discrimination on the basis of disability in employment, state and local government, public accommodations, commercial facilities, transportation, and telecommunications.
Multiple Sclerosis Info on the Web: Multiple sclerosis information on the web… on Twitter… on Facebook… oh my! When newly diagnosed with something like multiple sclerosis, your first task is to get educated so that you can become your own best advocate. We truly do live in the information age and the internet can be a wonderfully informative source once you weed out the clutter.
