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Archive for March, 2010

Inside the Maze 3/12/10

Written by Ann Pietrangelo on Friday, March 12th, 2010 in Inside the Maze.

On Writing

One of my favorite television shows of all time is The Dick Van Dyke Show. There is a particular episode that sprang to mind this week and, thanks to hulu.com, I was able to revisit it.

The episode centered around Rob’s desire to fulfill his lifelong dream of completing a novel. Until his wife, Laura, intervened, the novel remained unfinished due to the many interruptions of daily life and a hectic schedule. He had more than enough excuses. When Laura arranged for Rob to spend some time in an isolated cabin to write, it became clear that the only thing preventing him from reaching his goal was himself.

I love it when Rob says, “Standing is working; sitting is working; pacing is writing; brushing your teeth; the hardest writing is the showering,” to which Laura responds, “You know what’s not writing… explaining what writing is.”

I definitely see myself in the Rob character, but have made significant progress with my own work this week. Thanks for the inspiration, Rob and Laura.

On National MS Education & Awareness Month

Longing for Liberation: If you are steadily losing your ability to walk… to move… to remain independent… your tolerance for extended debate and controversy over a possible treatment, if not a cure, is put to the test. In this case, debate centers around “Liberation Treatment.” All around the world people with multiple sclerosis have been clamoring for action, ever since last September, when cardiovascular surgeon Dr. Paolo Zamboni released his controversial findings.

Diagnosis, Denial, Due Diligence: What do you do when everything you know about yourself changes just as you are hitting midlife? How do you plan for life’s second half with a body you’ve never met before? How do you cope with a relapsing/remitting disease that shows itself on some days and plays hide and seek on others, never knowing which it will be? How do you pull yourself together?

Who Gets It and Why: Get the who, what, where, when, why, and how of multiple sclerosis.

A Diagnosis Odyssey: It began with a seemingly benign but persistent tingly feeling in my upper right arm. It was the kind of thing you tend to dismiss and certainly not the kind of thing that makes you rush out to see a doctor. Little did I know what was to come.

Elsewhere on the Web

The federal government may be having a hard time passing health care reform, but states aren’t wasting any time with efforts to block its effects. Health Care: Who’s Stalling, Who’s Making Preemptive Strikes, Who’s Paying the Price

Children have been warned to “just say no to drugs” and told the dangers of illegal substance abuse, but more kids are getting high by huffing legal substances than by marijuana, cocaine, and hallucinogens combined. And they are often doing right in their own homes. Huffing: The Fatal Consequences of Ignorance

Ever wonder about the folks behind the posts on Care2.com? Here’s your opportunity to meet the writers.

Read More
Care2 Healthy & Green Living with MS
Care2 Reform Health Policy

Connect: FacebookLinkedInTwitter

Contact: writer@webcampone.com

WebCamp One, LLC: Full-service website design, management, and development company with clients throughout the USA and Canada. Expert in standards compliant website design. From website management to freelance writing, we’ve got the web covered. Visit: WebCamp One on Facebook.

The federal government may be having a hard time passing health care reform, but states aren’t wasting any time with efforts to block its effects.

While President Obama takes health care reform back on the road again and Health and Human Services Secretary Kathleen Sebelius sends a warning to insurers that continuing to raise premiums will hurt the industry, states are working overtime to take matters into their own hands.

This week Virginia became the first state to enact a statute to amend state law…

Read this post in its entirety:

Health Care: Who’s Stalling, Who’s Making Preemptive Strikes, Who’s Paying the Price

Photo: http://www.sxc.hu/photo/1034819

Longing for Liberation

Written by Ann Pietrangelo on Wednesday, March 10th, 2010 in Doctors, Extras, Health Care Policy, In The News, Medications.

If you are steadily losing your ability to walk… to move… to remain independent… your tolerance for extended debate and controversy over a possible treatment, if not a cure, is put to the test.

In this case, debate centers around “Liberation Treatment.” All around the world people with multiple sclerosis have been clamoring for action, ever since last September, when cardiovascular surgeon Dr. Paolo Zamboni released the results of a preliminary study of MS patients indicating a link to chronic cerebrospinal venous insufficiency (CCSVI), a narrowing of the veins that restricts the flow of blood from the brain, causing iron build up, in turn causing the degeneration of neurons.

Dr. Zamboni undertook this research in response to his wife’s own heartbreaking battle against MS. The resulting theory that some types of MS are caused by CCSVI, told him that it might be treated by clearing out major veins to free the blood flow. After confirming that his wife did indeed have CCSVI, he opened the veins by using a small inflated balloon to clear the blockage, a procedure that has earned the moniker Liberation Treatment. In the three years following her surgery, she has not had a relapse…

Read this post in its entirety:

Longing for Liberation

More on Multiple Sclerosis Education & Awareness Month

A Diagnosis Odyssey

Who Gets It and Why

Diagnosis, Denial, Due Diligence

Photo: http://www.sxc.hu/photo/1095865

Diagnosis, Denial, Due Diligence

Written by Ann Pietrangelo on Monday, March 8th, 2010 in Health Care Policy, In The News.

So you’ve been diagnosed with multiple sclerosis. Now what?

Denial. My own lasted only a few brief moments. The odyssey to diagnosis was a difficult one, and I quickly embraced the sweet relief of finally having an answer. But then it hit me

I have MS… I have MS… I have MS… Me… MS!

There was a surreal quality about the whole thing. Discombobulation sums it up rather nicely.

What do you do when everything you know about yourself changes just as you are hitting midlife? How do you plan for life’s second half with a body you’ve never met before? How do you cope with a relapsing/remitting disease that shows itself on some days and plays hide and seek on others, never knowing which it will be? How do you pull yourself together?

Read this post in its entirety:

Diagnosis, Denial, Due Diligence

Photo: http://www.sxc.hu/photo/1158788

More on MS Awareness Month

A Diagnosis Odyssey

Who Gets It and Why

Reconciliation: What Does It Really Mean Anyway?

Written by Ann Pietrangelo on Saturday, March 6th, 2010 in Health Care Policy, In The News, Inside the Maze.

Reconciliation can sound like a dirty word, depending upon who is doing the speaking, but the process is nothing new and is certainly not out of the bounds of normal politics.

Introduced in 1974, the process of reconciliation is used when Congress issues directives to legislate policy changes in mandatory spending (entitlements) or revenue programs (tax laws) to achieve the goals in spending and revenue contemplated by the budget resolution.

Reconciliation was first used in 1980 and at least 22 times since then on a variety of policies including overhauling the welfare system, and passing several huge tax cuts under George W. Bush. Of the 22 times reconciliation has been used, 16 were approved by a Republican-controlled Senate.

Read this post in its entirety:

Reconciliation: What Does It Really Mean Anyway?

Photo: http://www.flickr.com/photos/kevinwburkett/ / CC BY-SA 2.0

Inside the Maze 3/5/10

Written by Ann Pietrangelo on Friday, March 5th, 2010 in Inside the Maze.

On National MS Education & Awareness Month

Multiple sclerosis. Is that the disease that puts you in a wheelchair or leads to a nursing home? Montel Williams… Richard Pryor… Annette Funicello… all names associated with MS, and isn’t there a mountain climber or two that have it?

Confused? You are not alone. That’s why the Multiple Sclerosis Foundation recognizes March as National MS Education & Awareness Month, and the National MS Society designated March 8-14 as MS Awareness Week.

Multiple Sclerosis (MS)… some call it the MonSter, or the Beast. It is a demyelinating disease, an invisible illness, a MySterious ailment subject to many MiSconceptions.

Throughout the month of March, I will offer glimpses into my own life with MS. While there is no such thing as a typical case, those who are familiar with MS will nod in recognition. If you are not familiar with MS, please allow us a few moments of your time during MS Awareness Month.

MS: A Diagnosis Odyssey: It began with a seemingly benign but persistent tingly feeling in my upper right arm. It was the kind of thing you tend to dismiss and certainly not the kind of thing that makes you rush out to see a doctor. Little did I know what was to come.

MS: Who Gets It and Why: Get the who, what, where, when, why, and how of multiple sclerosis.

Elsewhere on the Web:

Reconciliation can sound like a dirty word, depending upon who is doing the speaking, but the process is nothing new and is certainly not out of the bounds of normal politics. Reconciliation: What Does It Really Mean Anyway?

“Every American who wants this reform to make their voice heard as well — every family, every business, every patient, every doctor, every nurse, every physician’s assistant. Make your voice heard.” Obama’s Call to Action: Will You Answer?

Read More
Care2 Healthy & Green Living with MS
Care2 Reform Health Policy

Connect: FacebookLinkedInTwitter

Contact: writer@webcampone.com

WebCamp One, LLC: Full-service website design, management, and development company with clients throughout the USA and Canada. Expert in standards compliant website design. From website management to freelance writing, we’ve got the web covered. Visit: WebCamp One on Facebook.

Obama’s Call to Action: Will You Answer?

Written by Ann Pietrangelo on Thursday, March 4th, 2010 in Health Care Policy, In The News.

What lends itself to demagoguery and political gamesmanship, misrepresentation and misunderstanding?

Health care reform is the obvious answer. “But,” said President Obama, “that’s not an excuse for those of us who were sent here to lead to just walk away. We can’t just give up because the politics are hard.”

The president’s latest proposal would change three basic things about the current health care system.

Read this post in its entirety:

Obama’s Call to Action: Will You Answer?

Photo: whitehouse.gov

MS: Who Gets It and Why

Written by Ann Pietrangelo on Tuesday, March 2nd, 2010 in Family, In The News, Medications, Symptoms.

Multiple Sclerosis (MS)… some call it the MonSter, or the Beast. It is a demyelinating disease, an invisible illness, a mysterious ailment subject to many misconceptions. Who, what, where, when, why, how… all good questions.

That’s why the Multiple Sclerosis Foundation recognizes March as National MS Education & Awareness Month, and the National MS Society designated March 8-14 as MS Awareness Week.

WHO gets MS? About 2.5 million people worldwide…

WHAT is MS? MS is a neurological disease in which…

WHERE is MS most prevalent? Northern latitudes farther…

WHEN do people get MS? It is difficult to pinpoint when MS begins, but diagnosis usually…

WHY do people get MS? That’s the big question! The cause…

HOW is MS treated? There are several…

Throughout the month of March, I will offer glimpses into my own life with MS in Care2 Healthy & Green Living. While there is no such thing as a typical case, those who are familiar with MS will nod in recognition. If you are not familiar with MS, please allow us a few moments of your time during MS Education and Awareness Month, and check back here in Care2 Causes in the weeks to come.

Read this post in its entirety:

Who Gets MS and Why

Photo: U.S. Centers for Disease Control and Prevention

Multiple sclerosis. Is that the disease that puts you in a wheelchair or leads to a nursing home? Montel Williams… Richard Pryor… Annette Funicello… all names associated with MS, and isn’t there a mountain climber or two that have it?

Confused? You are not alone. That’s why the Multiple Sclerosis Foundation recognizes March as National MS Education & Awareness Month, and the National MS Society designated March 8-14 as MS Awareness Week.

Throughout the month of March, I will offer glimpses into my own life with MS. While there is no such thing as a typical case, those who are familiar with MS will nod in recognition. If you are not familiar with MS, please allow us a few moments of your time during MS Awareness Month.

A Diagnosis Odyssey

It began with a seemingly benign but persistent tingly feeling in my upper right arm. It was the kind of thing you tend to dismiss and certainly not the kind of thing that makes you rush out to see a doctor.

Read this post in its entirety:

Multiple Sclerosis Awareness Month: A Diagnosis Odyssey

Photo: copyright WebCamp One LLC



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