MS Maze

Happy Birthday, Mom (Jake)

Your Health is on the Line (Mandy)

Thank You, Professor Pausch (Mandy)

Life Interrupted: It’s Not All About Me
by Chris M. Tatevosian

“Life Interrupted: It’s Not all about Me, is a candid and humble memoir about one young man’s diagnosis of Multiple Sclerosis and how his ‘poor-me’ attitude cost him his marriage. Chris hopes others might learn from his mistakes to communicate more effectively and not allow disability and low self-worth to destroy relationships. Chris also writes about his faith in God, and his new wife, Jane, who he married in April of 2007.”

More Information Here

Marriam-Webster OnLine defines the word disabled as: “incapacitated by illness or injury; also : physically or mentally impaired in a way that substantially limits activity especially in relation to employment or education”

Am I disabled? Are you? The definition sounds fairly cut and dry, but when I try to apply it to my own life, things get a little fuzzy.

Continue…

Every single day, Multiple Sclerosis Central, and The Health Central Network’s other health-related sites, are visited by people from every walk of life, as they search for answers.

From the Washington Post, July 21, 2008

Seeking a Cure, Patients Find a Dose of Conversation Online

and

from The Health Central Network’s Multiple Sclerosis Central, May 7, 2008

MS Patients Reaching Out Online - Jump On Board!

by Mandy Crest

I have multiple sclerosis. My husband, Jake, is a caregiver. We’re a bit uncomfortable with that term because we’re not sure that it truly applies. Someone recently suggested “care partner,” and that seems more suited to our particular situation. He knows I love him. But, sometimes, I’ve got to give a little care to the caregiver.

Read “Caring for the Caregiver”

We’ve got widgets!

Get Mandy’s Widget

Get Jake’s Widget

Visit Widgetbox

It’s the foot wiggle. That’s my MS “tell.”

I’m not talking about the big changes brought about by MS. I’m talking about the tiny, seemingly insignificant things.

What’s your MS “tell?”

Caregiver Jake senses “A Shift in the Wind” and longs for few days at the beach.

Sunshine and Moonlight’s “O Sole Mio Sundays” gives a tip of the hat to our own Jake Crest, caregiver extraordinaire.

Thank you to all the caregivers, who do what they can to ease our burdens. And thank you, Sunshine, for your kind words.

David Lander (Squiggy of Happy Days fame) hid is diagnosis of multiple sclerosis for 15 years. Read his story in the Calgary Herald, July 12, 2008, “Squiggy Recounts Happy Days.”

There was a brief news item the other day that captured my attention and reminded me of the heroes among us. Their circumstances strain the imagination. Few among us can even begin to comprehend the world through their eyes, yet they inspire us to appreciate our own gifts.

You can read the rest of this SharePost by visiting:
Extreme Perseverance

The recent sharepost by Dr. Gross, “Fatigue and Sleepiness in Multiple Sclerosis”, couldn’t have come at a better time for me. After a month of high energy, I just recently began to slide back into the clutches of fatigue. The first day that it hit again, I tried to ignore it, even though I felt as though my body weight had tripled. The second day, I couldn’t ignore it, but I tried to pretend that it wasn’t so. By the third day, fatigue was winning. Sitting at my keyboard around 3:00 p.m., I felt my eyes closing even while I continued to type. My head seemed so much heavier than my neck could possibly hold, and the fog came rolling in. I thought I’d just lie down for a moment. I didn’t even recall my head hitting the pillow when I woke up t…

You can read the rest of this SharePost by visiting:
Did Rip Van Winkle Have MS?

There’s a lot of confusion when it comes to COBRA. What are the benefits, and who is eligible? COBRA stands for Consolidated Omnibus Budget Reconciliation Act, but that doesn’t make it any easier to comprehend. Continue…

The state of the economy is front and center in virtually every newspaper and newscast. The mortgage meltdown, stock market troubles, job losses, and increasing costs of everything from food to fuel are impossible to ignore. These are trying times for the family finances. Health care is a major budgetary item and can take quite a bite, but if someone in your household lives with a chronic condition, such as multiple sclerosis, that bite could be a whopper. Continue…

I do adore a good cup of coffee… and it definitely would be an easier weapon in the battle against MS than daily injections. Oh, say it’s so!

From Web MD, Could Caffeine Stop MS in its Tracks? by Salynn Boyles