MS Maze

The federal government may be having a hard time passing health care reform, but states aren’t wasting any time with efforts to block its effects.

While President Obama takes health care reform back on the road again and Health and Human Services Secretary Kathleen Sebelius sends a warning to insurers that continuing to raise premiums will hurt the industry, states are working overtime to take matters into their own hands.

This week Virginia became the first state to enact a statute to amend state law…

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Health Care: Who’s Stalling, Who’s Making Preemptive Strikes, Who’s Paying the Price

Photo: http://www.sxc.hu/photo/1034819

If you are steadily losing your ability to walk… to move… to remain independent… your tolerance for extended debate and controversy over a possible treatment, if not a cure, is put to the test.

In this case, debate centers around “Liberation Treatment.” All around the world people with multiple sclerosis have been clamoring for action, ever since last September, when cardiovascular surgeon Dr. Paolo Zamboni released the results of a preliminary study of MS patients indicating a link to chronic cerebrospinal venous insufficiency (CCSVI), a narrowing of the veins that restricts the flow of blood from the brain, causing iron build up, in turn causing the degeneration of neurons.

Dr. Zamboni undertook this research in response to his wife’s own heartbreaking battle against MS. The resulting theory that some types of MS are caused by CCSVI, told him that it might be treated by clearing out major veins to free the blood flow. After confirming that his wife did indeed have CCSVI, he opened the veins by using a small inflated balloon to clear the blockage, a procedure that has earned the moniker Liberation Treatment. In the three years following her surgery, she has not had a relapse…

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Longing for Liberation

More on Multiple Sclerosis Education & Awareness Month

A Diagnosis Odyssey

Who Gets It and Why

Diagnosis, Denial, Due Diligence

Photo: http://www.sxc.hu/photo/1095865

So you’ve been diagnosed with multiple sclerosis. Now what?

Denial. My own lasted only a few brief moments. The odyssey to diagnosis was a difficult one, and I quickly embraced the sweet relief of finally having an answer. But then it hit me

I have MS… I have MS… I have MS… Me… MS!

There was a surreal quality about the whole thing. Discombobulation sums it up rather nicely.

What do you do when everything you know about yourself changes just as you are hitting midlife? How do you plan for life’s second half with a body you’ve never met before? How do you cope with a relapsing/remitting disease that shows itself on some days and plays hide and seek on others, never knowing which it will be? How do you pull yourself together?

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Diagnosis, Denial, Due Diligence

Photo: http://www.sxc.hu/photo/1158788

More on MS Awareness Month

A Diagnosis Odyssey

Who Gets It and Why

Reconciliation can sound like a dirty word, depending upon who is doing the speaking, but the process is nothing new and is certainly not out of the bounds of normal politics.

Introduced in 1974, the process of reconciliation is used when Congress issues directives to legislate policy changes in mandatory spending (entitlements) or revenue programs (tax laws) to achieve the goals in spending and revenue contemplated by the budget resolution.

Reconciliation was first used in 1980 and at least 22 times since then on a variety of policies including overhauling the welfare system, and passing several huge tax cuts under George W. Bush. Of the 22 times reconciliation has been used, 16 were approved by a Republican-controlled Senate.

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Reconciliation: What Does It Really Mean Anyway?

Photo: http://www.flickr.com/photos/kevinwburkett/ / CC BY-SA 2.0

On National MS Education & Awareness Month

Multiple sclerosis. Is that the disease that puts you in a wheelchair or leads to a nursing home? Montel Williams… Richard Pryor… Annette Funicello… all names associated with MS, and isn’t there a mountain climber or two that have it?

Confused? You are not alone. That’s why the Multiple Sclerosis Foundation recognizes March as National MS Education & Awareness Month, and the National MS Society designated March 8-14 as MS Awareness Week.

Multiple Sclerosis (MS)… some call it the MonSter, or the Beast. It is a demyelinating disease, an invisible illness, a MySterious ailment subject to many MiSconceptions.

Throughout the month of March, I will offer glimpses into my own life with MS. While there is no such thing as a typical case, those who are familiar with MS will nod in recognition. If you are not familiar with MS, please allow us a few moments of your time during MS Awareness Month.

MS: A Diagnosis Odyssey: It began with a seemingly benign but persistent tingly feeling in my upper right arm. It was the kind of thing you tend to dismiss and certainly not the kind of thing that makes you rush out to see a doctor. Little did I know what was to come.

MS: Who Gets It and Why: Get the who, what, where, when, why, and how of multiple sclerosis.

Elsewhere on the Web:

Reconciliation can sound like a dirty word, depending upon who is doing the speaking, but the process is nothing new and is certainly not out of the bounds of normal politics. Reconciliation: What Does It Really Mean Anyway?

“Every American who wants this reform to make their voice heard as well — every family, every business, every patient, every doctor, every nurse, every physician’s assistant. Make your voice heard.” Obama’s Call to Action: Will You Answer?

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Care2 Healthy & Green Living with MS
Care2 Reform Health Policy

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WebCamp One, LLC: Full-service website design, management, and development company with clients throughout the USA and Canada. Expert in standards compliant website design. From website management to freelance writing, we’ve got the web covered. Visit: WebCamp One on Facebook.

What lends itself to demagoguery and political gamesmanship, misrepresentation and misunderstanding?

Health care reform is the obvious answer. “But,” said President Obama, “that’s not an excuse for those of us who were sent here to lead to just walk away. We can’t just give up because the politics are hard.”

The president’s latest proposal would change three basic things about the current health care system.

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Obama’s Call to Action: Will You Answer?

Photo: whitehouse.gov

Multiple Sclerosis (MS)… some call it the MonSter, or the Beast. It is a demyelinating disease, an invisible illness, a mysterious ailment subject to many misconceptions. Who, what, where, when, why, how… all good questions.

That’s why the Multiple Sclerosis Foundation recognizes March as National MS Education & Awareness Month, and the National MS Society designated March 8-14 as MS Awareness Week.

WHO gets MS? About 2.5 million people worldwide…

WHAT is MS? MS is a neurological disease in which…

WHERE is MS most prevalent? Northern latitudes farther…

WHEN do people get MS? It is difficult to pinpoint when MS begins, but diagnosis usually…

WHY do people get MS? That’s the big question! The cause…

HOW is MS treated? There are several…

Throughout the month of March, I will offer glimpses into my own life with MS in Care2 Healthy & Green Living. While there is no such thing as a typical case, those who are familiar with MS will nod in recognition. If you are not familiar with MS, please allow us a few moments of your time during MS Education and Awareness Month, and check back here in Care2 Causes in the weeks to come.

Read this post in its entirety:

Who Gets MS and Why

Photo: U.S. Centers for Disease Control and Prevention

Multiple sclerosis. Is that the disease that puts you in a wheelchair or leads to a nursing home? Montel Williams… Richard Pryor… Annette Funicello… all names associated with MS, and isn’t there a mountain climber or two that have it?

Confused? You are not alone. That’s why the Multiple Sclerosis Foundation recognizes March as National MS Education & Awareness Month, and the National MS Society designated March 8-14 as MS Awareness Week.

Throughout the month of March, I will offer glimpses into my own life with MS. While there is no such thing as a typical case, those who are familiar with MS will nod in recognition. If you are not familiar with MS, please allow us a few moments of your time during MS Awareness Month.

A Diagnosis Odyssey

It began with a seemingly benign but persistent tingly feeling in my upper right arm. It was the kind of thing you tend to dismiss and certainly not the kind of thing that makes you rush out to see a doctor.

Read this post in its entirety:

Multiple Sclerosis Awareness Month: A Diagnosis Odyssey

Photo: copyright WebCamp One LLC

Having trouble getting health insurance? Maybe you can get on your pet’s insurance plan. Probably not, but that didn’t stop Hal Ziegler from making the call anyway, after receiving the infamous rate increase letter from Anthem Blue Cross.

Terri Carlson finds herself in a similar situation. Her attempt at a solution was to advertise for a husband with health insurance benefits. It’s a fairly drastic response, but desperate times call for desperate measures.

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Pet Insurance for People..Marriage for Healthcare..How Far Would You Go?

Photo: http://www.sxc.hu/photo/911229

On Writing

Making goals and sticking to them… last week’s ruminations about my still unfinished book and rambling about a lack of deadlines resulted in a virtual put up or shut up from a writer friend. Actually, he proposed that we set a weekly writing goal and hold each other’s feet to the fire. Casting aside my fear of failure, I took him up on it.

We started with a very manageable weekly minimum that I secretly vowed to surpass. I never did come up with a title for my project, so I started anew with a clean manuscript (lots of edits from the previous version will be transferred over) and gave it the very confident-sounding working title “This Is It.” Okay, my friend, we’re on. My keyboard is burning and I’ll be checking up on you…

We bloggers can have fragile egos. We want to be read and we want to know that we matter. Novice bloggers, while trying to build a following, often harbor serious doubts. This great read on BlogHer fills newbie bloggers in on the cold hard truth behind blogging: Hey, Jealousy: Every Blogger Was a Newbie Once. Every blogger will recognize themselves in this one.

Around the Web This Week

Business owners take note. Discretionary spending to the tune of $175 billion is at stake. People with disabilities enjoy going out and socializing with their friends and family… and they spend money. If they cannot enter your establishment without a great deal of difficulty, they will patronize your competitor. Accessible Design Makes Good Business Sense

“The health insurance industry is the shark that swims just below the water, and you don’t see that shark until you feel the teeth of that shark.” – Senator Jay Rockefeller (D-WV). Despite the bipartisan health care summit, the shark is still circling. After the Health Care Summit : The Shark in the Water

Having trouble getting health insurance? Maybe you can get on your pet’s insurance plan. Probably not, but that didn’t stop Hal Ziegler from making the call anyway, after receiving the infamous rate increase letter from Anthem Blue Cross. Pet Insurance for People..Marriage for Healthcare..How Far Would You Go?

Is there a link between the use of occupational pesticides and Parkinson’s disease? That’s what we’d like to know. Find out more: Pesticides and Parkinson’s: Possible Link Must Be Investigated

The White House released his proposed health care reform proposal on Monday, despite Republican demands to scrap the whole thing and start over with Thursday’s “bi-partisan” health care reform summit. Obama Health Care Plan Targets Insurers, Lacks Public Option

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Care2 Healthy & Green Living with MS
Care2 Reform Health Policy

Connect: Facebook – LinkedIn – Twitter

Contact: writer@webcampone.com

WebCamp One, LLC: Full-service website design, management, and development company with clients throughout the USA and Canada. Expert in standards compliant website design. From website management to freelance writing, we’ve got the web covered. Visit: WebCamp One on Facebook.

“The health insurance industry is the shark that swims just below the water, and you don’t see that shark until you feel the teeth of that shark.” – Senator Jay Rockefeller (D-WV)

Despite the bipartisan health care summit, the shark is still circling. During the great airing of grievances, it became immediately clear that both Democrats and Republicans are confident in their interpretation of what the American people want and need.

A minor exchange between John McCain and President Obama provided a flashback to campaign days, and the stack of papers representing the Senate bill was referred to as a “prop” by the President.

A recurring theme on the Republican side was the admonition to…

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After the Health Care Summit : The Shark in the Water

Photo: whitehouse.gov

Is there a link between the use of occupational pesticides and Parkinson’s disease? That’s what we’d like to know.

People with Parkinson’s disease have been found to have significantly higher blood levels of a particular pesticide than healthy people or those with Alzheimer’s disease, say researchers at UT Southwestern Medical Center.

A study recently published in the Archives of Neurology found a link between use of pesticides in a person’s occupation, such as farming and other agricultural work, and development of Parkinson’s disease. Three chemical compounds were found to be associated with a three-fold increase in risk of developing Parkinson’s disease.

Read this post in its entirety and check out the Care2 action items:

Pesticides and Parkinson’s: Possible Link Must Be Investigated

Business owners take note. Discretionary spending to the tune of $175 billion is at stake.

People with disabilities enjoy going out and socializing with their friends and family… and they spend money. If they cannot enter your establishment without a great deal of difficulty, they will patronize your competitor.

If you are under the impression that there are no people with disabilities in your neighborhood, it is more likely that they simply are not visiting your place of business and are spending their discretionary dollars elsewhere.

What does it take to be “accessible?”

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Accessible Design Makes Good Business Sense

Photo: http://www.sxc.hu/photo/758000

President Obama released his proposed health care reform proposal on Monday, despite Republican demands to scrap the whole thing and start over with Thursday’s “bi-partisan” health care reform summit.

The White House frames its plan as an opening bid for the summit and sticks fairly closely to the Senate bill, but eliminating the sweetheart deals with individual states and easing the tax burden on high-end (cadillac) health plans.

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Obama Health Care Plan Targets Insurers, Lacks Public Option

Sorry, but it’s not me… it’s you. Despite evidence to the contrary, most Americans believe they are managing their own health well, while those around them clearly are not. Only 17 percent of us recognize that our own health is going in the wrong direction and we’re pointing fingers.

It is human nature to give ourselves the benefit of the doubt, easier to make excuses for our own shortcomings, even while casting a critical eye on everyone else. We sneak in that extra sugary snack and conveniently dismiss it as just a little treat. Ten minutes of exercise seems like 30 when you’re the one doing the exercising. You smoke, but you’re tapering off.

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It’s Not Me… It’s You

Health Care Self-Advocacy: Be the Squeaky Wheel

Photo: http://www.sxc.hu/photo/905626